WCCIP 2109 S. Stoughton Road, Madison WI 53716 Ph 800.366.3556 Fx 608.224.6178The following entities are statewide or regional organizations, who play an important role in promoting and supporting inclusive child care throughout the state. These entities provide a variety of services ranging from information and education to advocacy, direct services and family support. Many organizations are statewide umbrella organizations which have local chapters. Services vary depending on where each chapter is located. This list includes the state headquarters of each organization. Each organization lists the name, address, phone and, if available, website, and a brief description of the services the organizations provide to promote or support inclusive child care.
Asthma | Attention Deficit Disorders | Autism | Birth Defects | Cerebral Palsy
Cystic Fibrosis | Developmental Disabilities | Emotional Disorders | Epilepsy | Hearing Impairments
Learning Disabilities | Muscular Dystrophy | Spina Bifida | Visual Impairment | Other Resources
- American Lung Association
150 Sunny Slope Road
Brookfield, WI 53085
800-586-4872 (Janet McMahon)
www.lungusa.org
The ALA provides information for providers about asthma and children. They have developed a handbook, "Counting on You" which provides information on triggers which may cause asthma, tips on preventing asthma triggers; and advise on prevent environmental causes of asthma. ALA has developed a handout which has an asthma care plan to be filled out by the parent and the child"s physicians. This includes information about when to call a child"s parent, when to call doctor and 911. An in-service training program is offered for teachers and parents of children with asthma.
- Children With Attention Deficit Disorder (CHADD)
414-299-9442
CHADD, children with attention deficit disorder, is an organization which has chapters throughout the state. They publish a newsletter, and provide information and support for families.
- C.H.A.D.D. National Call Center
800-233-4050
www.chadd.org
- Autism Society of Wisconsin
103 West College Avenue, Suite 709
Appleton, WI 54911-5744
888-428-8476
www.asw4autism.org
The Autism Society offers information, advocacy and support for families. The society has local chapters throughout the state which offer a range of services.
- Wisconsin Early Autism Project
6402 Odana Road
Madison, WI 53719
608-288-9040 (Theresa Waage)
The Early Autism Project provides information, advocacy, family therapy and parent support groups.
- The Autism Society of America
800-328-8476
www.autism-society.org
- March of Dimes Birth Defects Foundation
888-663-4637
www.modimes.org
Wisconsin chapter: www.modbabies.org
- United Cerebral Palsy (UCPA)
1660 L. Street, NW
Suite 700
Washington, DC 20036-55602
800-872-1827
202-776-0406
www.ucpa.org
UCPA is a non-profit, human service organization that aims to improve the quality of life for persons with cerebral palsy and other disabilities. They have informational brochures, books, videos, and other materials for parents and others who work with children with disabilities. The website also has contact information for local organizations in Wisconsin.
- National Cystic Fibrosis Foundation
800-344-4823
www.cff.org
Wisconsin chapter:
800-472-7720
www.cff.org/wisconsin.htm
- The Arc - Dane County
121 South Hancock, Madison, WI 53703
608-251-9272
800-433-5255
TDD: use 800-855-1155
www.arcdanecounty.org
Arc offers advocacy for person's with cognitive delays, parent support groups, training, information and referral. The 31 local chapters throughout the state offer services ranging from information and referral to operating group homes
.
- The Arc of the United States
301-565-3842
www.thearc.org
- Down Syndrome Association of Wisconsin
P.O. Box 23384
Milwaukee, WI 53223
414-355-1404 (Joan Balliet)
www.dsaw.org
The Down Syndrome Association of Wisconsin is a statewide organization with volunteer board members in different parts of the state. Services provided include information and referral, resource library, advocacy, a quarterly newsletter, and holding recreational and holiday events for families.
- National Down Syndrome Society
800-221-4602
www.dndss.org
- The Administration on Developmental Disabilities (ADD)
U.S. Department of Health and Human Services
ADD manages grant programs with the goal of forming partnerships with state governments, local communities and the private sector to assist people with developmental disabilities to reach their maximum potential through increased independence, productivity, and community integration.
202-690-6590 (Lynne Lau or Shirley Redmond)
www.acf.dhhs.gov/programs/add
- Children Come First
16 North Carroll Street
Madison, WI 53703
608-255-1875
Children Come First provides support for children affected with severe emotional disorders. Services are provided to children in their natural settings (child care, home, etc.).
- Epilepsy Foundation of Southeastern Wisconsin
735 North Water Street, Suite 701
Milwaukee, WI 53202
414-271-0110 (Roxanne Plapp)
www.epilepsyfoundationsewi.org
- Epilepsy Foundation of America
800-332-1000
www.efa.org
- The Wisconsin Speech-Language Pathology and Audiology Association
330 East Lakeside Street
P.O. Box 1109
Madison, WI 53715
800-545-0640
608-283-5489 (Shawn Sorenson)
www.wisha.org
- National Center for Learning Disabilities
214-687-7211
www.ncld.org
- Wisconsin Family Assistance Center for Education, Training and Support
2714 North Dr. Martin Luther King Dr. Suite E
Milwaukee, WI 53213
414-374-4645
- Muscular Dystrophy Association (MDA)
2949 North Mayfair Road, Suite 104
Wauwatosa, WI 53713
414-476-9700
www.mdausa.org (national website)
MDA provides education about the disease and about the concerns related to children using wheelchairs. They provide education in schools and in child care settings.
- Spina Bifida Association of America
800-621-3141
www.sbaa.org
Wisconsin chapter: http://sbawi.4t.com
- Wisconsin Center For Blind and Visually Impaired Children
1700 West State Street
Janesville, WI 53546
800-832-9784
www.dpi.state.wi.us/dpi/dlsea/wcbvi
Services offered through this center include staff training, occupational therapy and physical therapy.
- Parents of Blind Children
608-848-9722 (Margie Watson)
This organization provides support to families with children who are blind.
- Wisconsin Council of the Blind
345 West Maine Street
Madison, WI 53703
608-255-1166
800-783-5213 (Jack Malin)
The Council of the Blind provides public education, information, training and referral for children who are visually impaired.
- Children"s Service Society of Wisconsin
1212 South 70th Street
Milwaukee, WI 53214-3105
414-299-9442
www.cssw.org
Children"s Services Society of Wisconsin is a statewide organization with 30 offices throughout the state. Services vary depending on location, but may include home services, family resources centers, parent education and support, child and family counseling, respite care, information and advocacy.
- The Department of Public Instruction (DPI)
P.O. Box 7841
Madison, WI 53707-7841
608-266-3390 (Jill Haglund)
www.dpi.state.wi.us
The Department of Public Instruction guides and supervises all contact special education services in the public schools. They offer information about the Birth to Three program, blending systems and other types of information.
- The Early Childhood Research Institute,
Culturally and Linguistically Appropriate Services (CLAS) Project
CLAS Research Institute
800-583-4135
www.clas.uiuc.edu
This is a collaborative effort of the University of Wisconsin-Milwaukee, and the University of Illinois at Urbana-Champaign Special Education Departments, the Council for Exceptional Children, the ERIC Clearinghouse on Disabilities and Gifted Education, and the ERIC Clearinghouse on Elementary and Early Childhood Education. These organizations work together to improve early intervention services for children and their families. Services provided include training materials for early intervention personnel, information packets for parents and teachers, resource materials or curriculum guides, awareness materials, journal articles, books and book chapters, videotapes, audiotapes, and multimedia kits.
- Easter Seal Society of Wisconsin
101 Nob Hill Road
Madison, WI 53210
608-277-8288
www.wi-easterseals.org
Provides camping programs, and assistance in purchasing disability related equipment.
- Family Village
www.familyvillage.wisc.edu
The Waisman Center has developed a website with information on a variety of resources related to disabilities and links to other sites. This site gives information and also offer links to other websites which contain information about specific disabilities, adaptive equipment, services, support groups and a variety of related information.
- The Katie Beckett Program
Department of Health & Family Services (DHFS)
608-266-3236
www.dhfs.state.wi.us/bdds/kbp.htm
The Katie Beckett Program is a federal and state supported program operated by the state which supports children with severe, long term disabilities or complex medical needs who might otherwise be institutionalized. There is a special eligibility process which allows the child to obtain a medicaid card and receive services. Family insurance, if any, is tapped first, and then Medicaid covers the rest of the services (co-pay). The child must be a U.S. citizen or legal resident, living at home. An assessment of daily functioning level is determined and the amount of care and support the child will need is established.
- National Information Center for Children/Youth with Disabilities (NICHCY)
P.O. Box 1492
Washington, DC 20013
800-695-0285
www.nichcy.org
NICHCY is the national information and referral center that provides information on disabilities and disability-related issues for families, educators, and other professionals with special focus on children and youth (birth to age 22).
- Parent Education Project (PEP)
2192 South 60th Street
West Allis, WI 53219
800-231-8321
414-328-5520
www.dhfs.state.wi.us/children/factsforfamilies/pepwi.htm
Services provided include phone consultation, parent networking, workshops, training for staff and parents, information and referral for services. Services are provided in Spanish, and operate throughout the state.
- Portage Project
Cooperative Educational Services Agency #5
626 East Slifer Street
P.O. Box 564
Portage, WI 53901
800-862-3725 Ext. 226 (Julia Herwig)
www.portageproject.org
The Portage Project advocates for the needs of children and families, provides information (books, videotapes) referral for services; offers training and technical assistance to children and families; training for individuals working with young children who have special needs, and in-home family support and assessment.
- University of Wisconsin, Waisman Center
Early Intervention Program
University Bay Drive
Madison, WI 53706
608-263-6467 (Linda Tuchman)
www.waisman.wisc.edu/index.htmlx
The Waisman Center offers a wide range of programs throughout the state which provide innovative and effective services and interventions for families with special needs; parent and provider support; opportunities for parental involvement in all facets of their child's care; training and technical assistance and provider training.
- Very Special Arts, Wisconsin
4785 Hayes Road
Madison, WI 53704
608-241-2131
www.vsawis.org
Very Special Arts provides a wide range of programs for all ages and a range of disabilities through out the state. The early childhood program incorporates teacher training and artist visits. A disability resource guide and videos are available for purchase which explain how to incorporate art into children's programming. The program also sponsors a children's art traveling exhibition.
- Wisconsin Child Care Information Center (CCIC)
2109 South Stoughton Road
Madison, WI 53716
800-362-7353
608-224-5388 (Lita Haddal)
www.dpi.state.wi.us/ccic
The CCIC is a lending library of information (books, video, training opportunities) about all facets of child care including information about children with special needs and inclusive child care.
- The Wisconsin Child Care Resource and Referral
(CCR & R) Network
6314 Odana Road
Madison, WI 53719
888-713-KIDS (5437)
www.wisconsinccrr.org
The CCR & R Network links families with their local resource and referral agencies and provides support to parents and child care providers.
- Wisconsin Coalition For Advocacy
920-684-0955 (Mike McDonald)
www.w-c-a.org
The coalition provides advocacy for families with disabilities and legal support to families who believe they may have been victims of discrimination as a result of their handicapping conditions.
- Wisconsin First Step
800-642-STEP
www.mch-hotlines.org/firststep.html
First Step is a resource and referral line which connects families, in communities across the state, with resources for their special needs children.
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